Young
Young
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The way it actually works is the reverse. You must first be who you really are, then do what you need to do, in order to have what you want.
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Often people attempt to live their lives backwards; they try to have more things, or more money, in order to do more of what they want, so they will be happier.
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In Australia, a deaf person attending an interview must take their own interpreter at their own expense, or ask the employer to provide one. Believe me, nothing says 'I'm the best person for this job' quite like asking an employer to pay to interview you.
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Most disability charity hinges on that notion - that you need to send your money in quick before all these poor, pitiful people die. Peddling pity brings in the bucks, yo.
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I've lost count of the number of times that I've been approached by strangers wanting to tell me that they think I'm brave or inspirational, and this was long before my work had any kind of public profile.
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The mere suggestion that not speaking for a day can give you an appreciation of the social isolation that comes with the experience of disability, particularly those whose impairments prohibit them from communicating verbally, is insensitive at best.
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We fill our lives with all sorts of things that make it easier for us to get along in the world: wheelchairs, crutches, grabber sticks, hearing aids, canes, guide dogs, modified vehicles, ramps, as well as other kinds of services and supports. Disability does not necessarily mean dependence on other people.
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I use the term 'disabled people' quite deliberately, because I subscribe to what's called the social model of disability, which tells us that we are more disabled by the society that we live in than by our bodies and our diagnoses.
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People are uncomfortable about disability, and so interactions can become unintentionally uncomfortable.
The killing of a disabled person is not 'compassionate'. It is not 'euthanasia'. It is murder.
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Many of us, particularly those of us with disabilities who have faced persistent discrimination throughout our lives, not least when trying to find employment in the first place, take enormous pride in our hard-fought jobs and careers.
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The battle to find a workplace that's wheelchair accessible is a feat in itself, let alone an employer who's going to be cool about employing someone with a disability in a job you actually want to do.
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The thing about living with any disability is that you adapt; you do what works for you.
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I am not a snowflake. I am not a sweet, infantilising symbol of fragility and life. I am a strong, fierce, flawed adult woman. I plan to remain that way, in life and in death.